The Count Me In Translocation Renal Cell Carcinoma Project (tRCCProject) is now open for enrollment! This is a research study of the Broad Institute of MIT and Harvard that enables cancer patients to directly transform cancer research and discovery. Any individual in the United States or Canada who has been diagnosed with tRCC can share information about their experience by completing surveys, sharing biological sample(s), and copies of their medical records with researchers in order to accelerate the pace of research and discovery.

We invite patients, caregivers and healthcare professionals to visit https://trccproject.org/ to learn more and participate! Please read the steps of how to participate and the FAQ.

We also want to invite you to RSVP for the upcoming webinar, on the above link: “Count Me In: Changing the Future of tRCC Research” on Wednesday, April 2, 2025, from 1 PM to 2 PM ET. Please join us with tRCC researcher Dr. Srinivas Viswanathan from Dana farber Cancer Institute and Dr. Elizabeth Mullen, MD from Boston Children’s, Kidney Cancer Association, Joey’s Wings Foundation and tRCC patient advocates.

We are so excited working with Count Me In in the past two years to make this happen! Count Me In is a patient-partnered research initiative led by the Broad Institute of MIT and Harvard and Dana-Farber Cancer Institute. The effort will engage with tRCC patients, empowering them to share their unique health data with scientists to accelerate research on tRCC. From their contributions, the Count Me In team analyzes and shares de-identified data freely to catalyze discoveries across cancer. Data generated by Count Me In is shared regularly via scientific platforms so that it can be harnessed by researchers everywhere to make impactful discoveries. To learn more about Count Me In’s current projects, please visit: https://joincountmein.org/scientific-research