Since my nephew’s tRCC diagnosis, I have scoured the web daily for new information on research and new treatments for this rare cancer . Thanks to the endless work of advocates such as Kathy Liu and Jill Dahan in increasing awareness and interest in the disease amongst eminent medical professionals, tRCC has finally a strong research presence and my aim is to keep up with all the new findings to help patients and their families. I am a retired oral surgeon from the UK, so most of the medical jargon in papers and oral presentations, does not phase me. I have found most researchers and clinicians, empathetic, very approachable, keen to share their knowledge as well as listen to suggestions. I am honored to be asked to join Joey’s Wings as I can see the enormous difference it has already made in many people’s lives.