Hashtag Prescription  The hidden cost of crowd-sourcing a cure – front cover story of Harper’s Magazine

Our journey of seeking compassionate use of immunotherapy for Joey.


A Wish for A Cure

Published September 18th, 2015 By WUFT News


Flying beyond cancer


The art of hope – Origami crane display honors Childhood Cancer Awareness Month

Published: Sep 15, 2015 By UFHealth


Living cancer: a radio series from WYNC in association with NPR.

The companion radio serials of Ken Burns’ documentary CANCER: THE EMPEROR OF ALL MALADIES will produce two series of in-depth, narrative reports for broadcast nationally on NPR’s news magazine shows. The first series, “Critical Decisions,” exploring the difficult decisions cancer patients and those who care for them must make. The second series, “Living Cancer,” will air in March 2015, exploring how cancer diagnosis and treatment can affect patients long after their initial diagnosis.
Joey’s story looks at compassionate use and pediatric drug trials, and the difficulties of children accessing potentially life-saving drugs. Here is the trailer . Stay tuned to NRP on Feb. 9th, 2015.



Son’s Rare Cancer Leads Family On Quest For Cure


Gainesville Sun in September 2014

It’s time to take a stand against childhood cancer.


Gainesville Sun in March 2015

Mom forms charity to continue fight against cancer that took her son.


Alligator newspaper in March 2015

‘Joey’s Run’ 5K honors life of Gainesville boy who loved to run.